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PHR 2014

Project researchers

The main goal of the workshop is to analyze the state of the art and the first results in this field; to present and discuss the benefits of the service and the response from those involved in the implementation and usage, and to share and disseminate experiences collected in the initiatives concerning Citizen’s Personal Notepad and PHR in different countries. Differences and similarities between Citizen’s Personal Notepad, and PHR will be discussed with the intention of learning from several existing experiences, and by doing so understanding the directions to take for the near future. The workshop is meant for executives, administrative officers and collaborators of Regions, Provinces and local healthcare structures who are interested in sharing their experiences on Personal Health Records (PHRs). 

Scientific Commettee Diego Conforti - PAT Stefano Forti - FBK Giandomenico Nollo - FBK Leonardo Sartori – APSS Ettore Turra – APSS Giuliano Mariotti - APSS Rappresentante EU Rappresentante Min Salute Rappresentante Regioni For general information about your participation in the event (registration, accommodation, travelling, etc.) please send an email to: or call +39 0461 - 314881
Aula Grande , Fondazione Bruno Kessler - Via S.Croce 77, Trento


Thursday, 20 March 2014

13.30 Registration

14.00 -16.30 From Electronic Health Record to Personal Health Record
Chairman: Ettore Turra (APSS)

14.00 Welcome and opening speeches by institutional representatives Autonomous Province of Trento and Progetto Mattone Internazionale

14.30 EHR: current status of art and future directions, Lidia Di Minco, Ministry of Health

15.00 PHR: definition and models, Stefano Forti, Fondazione Bruno Kessler

15.20 PHR: supporting tools for Patient Empowerment, Luca Buccoliero, CERMES - Marketing Department, Bocconi University

15.45 EHR: technology for health, regulations and use rules, Filomena Polito, Data Protection Officer, USL5 of Pisa

16.10 Personal Health Records: legal aspects, Paolo Guarda and Rossana Ducato, University of Trento

16.35 Coffee break

17.00-18.30 Beyond the national boundaries
Chairman: Giandomenico Nollo (FBK)

17.00 eHealth in Europe, Benoit Abeloos, Project and Policy Officer in Health and Well-being Unit, EU

17.30 PHR in Europe: an international case, Ignasi Garcia Mila, Fundació TicSalut ,Department of Health – Generalitat de Catalunya

18.00 Discussion


Friday, 21 March 2014

8.30 Registration

9.00-11.15 National case studies
Chairman: Giuliano Mariotti (APSS)

9.00 Welcome and Opening speeches

9.05 PHR in Trentino: The TreC Project, Diego Conforti, PAT, and Leonardo Sartori, APSS

9.45 National case study on Citizen’s Personal Notepad and PHR: Lombardy region, Chiara Penello, General Health Management

10.05 National case study on Citizen’s Personal Notepad and PHR: Emilia Romagna region, Anna Darchini, Head of Innovation and ICT Development

10.25 National case study on Citizen’s Personal Notepad and PHR: Tuscany region, Cecilia Chiarugi, Information System and Information Technologies

10.45 National case study on Citizen’s Personal Notepad and PHR: Veneto region, Lorenzo Gubian, Information System Service SSR

11.15 Coffee break

11.45-13.00 Discussion panel: Innovative models of Telemedicine and Patient Empowerment
Chairman: Pasquale Tarallo, expert of innovative projects and author of Il sole 24 ore

Tonino Aceti (National Coordinator Tribunal for Patients' Rights), Maurizio Benato (Medical Association), Annalisa Silvestro (College of Nurses), Pharmacist Association, Valerio Fabio Alberti (FIASO)